A 15yr old boy that has been battling Severe Aplastic Anemia since June 23rd, 2012. He has had 2 bone marrow transplants during the course of 8 months.
Please help us stay in our home. I have a sick son diagnosed with Severe Aplastic Anemia in June of 2012. He has had 2 bone marrow transplants since that time and is currently still recovering. Medicaid does not pay for a home health nurse and therefore I have to care for him myself. We are expecting for him to recover by August of 2014. Until then I am unable to hold down a full time job.
Donations urgently needed. Please share with others you know. Thanks to those that have taken the time to donate... It is very much appreciated.. Hope everyone had a wonderful Thanksgiving!!
My son has been struggling with Severe Aplastic Anemia since June 23, 2012. He has had 2 bone marrow transplants within the last 8 months. Insurance does not cover all of his medical expenses.
Please donate, even if its $5 or $10, every little bit helps!!
Please show your support by donating to John Johns Journey. He is my 15yr old son that is battling Severe Aplastic Anemia and has had 2 bone marrow transplants since August 1, 2012
Insurance does not cover all of his medical expenses.
Prior to June 23 2012, John John was a healthy 14 year old, 6ft tall boy that always had a smile on his face. He is an excellent student in school and is well liked by his peers and teachers. Johnathan is like any other kid and enjoys playing games, listening to music, and getting on Facebook to communicate with those near and far. He also loves to play basketball and was recruited by his gym teacher to play for the school team. On June 27, 2012, out of the blue, John John was diagnosed with Severe Aplastic Anemia...a rare disease of the bone marrow. It's so rare that only about 3 out of every 1 million people in the United States get aplastic anemia each year. The bone marrow stops making enough red blood cells, white blood cells and platelets for the body. Any blood cells the marrow does make are normal, but there are not enough of them. Aplastic anemia can be moderate, severe or very severe. People with severe or very severe aplastic anemia are at risk for life-threatening infections or bleeding. Thankfully John John's older brother was a match and on August 1st, 2012, he had a bone marrow transplant! He stayed in the hospital under the doctors observation and has since been released with many restrictions. We are hoping to raise funds to help his mom who is a single mother of four, recently fired from her job because she had to be at the hospital with her child.
Of recent, over the last couple of weeks, John John's body started rejecting the bone marrow transplant he received and his counts have been steadily dropping. As a result, he is receiving weekly units of blood and platelets as well as an injection of neupogen daily to boost up the white blood cell count.
He has been hospitalized since March 22 with between 102-103 degree fevers as well as an infection in the back of his throat. This due to the low numbers. We hope for him to not have a fever for at least 24hrs before he can go home tomorrow. He has had a second transplant on April 30th, 2013. They had to approach it very aggressively this second time around by adding radiation therapy on top on the chemo in order to prepare his body for transplant this time. We are at the point where his meds have to keep getting adjusted in order for his body to accept the transplant properly. The insurance is not covering alot of his medical expenses especially with this being his 2nd transplant therefore a fundraiser has been setup to help with the costs. I have setup a Facebook Page aptly titled "John Johns Journey" where you can follow along with his journey from week to week. John Johns Journey I have also started a John Johns Journey Group on Facebook as well... John Johns Journey Facebook Group Page
This is my 15yr old son John John. He was diagnosed with Severe Aplastic Anemia on June 23, 2012 and had a bone marrow transplant on August 1, 2012. Then his body started to reject the transplant around March 23, 2013 and as a result had another bone marrow transplant on April 30th, 2013.
Insurance does not cover alot of his medical expenses so we have started a fundraiser.
I created this video to bring awareness to aplastic anemia.